Craniofacial Resources, including Cleft Lip and Palate
/The Craniofacial Clinic at Children's Hospital in Seattle just went online with a great resource for craniofacial conditions like ... (following links and text from their site)
The Craniofacial Clinic site also offers a glossary of craniofacial terms.
- Cleft Lip and Palate
The most common condition that we treat.- Velopharanynegeal Insufficiency (VPI)
Children with cleft palate are at risk for VPI, a disorder that affects speech.- Pierre Robin Sequence
A birth defect that involves an abnormally small lower jaw and breathing problems.- Stickler Syndrome
A genetic disorder of connective tissue that results in problems with vision, hearing, facial and skeletal development.- Velocardiofacial Syndrome
A complex craniofacial condition often linked with cleft palate.- Van der Woude Syndrome
An inherited form of cleft lip and/or palate.- Craniosynostosis
A birth defect caused by premature fusion of skull bones; the second most common condition we treat.- Crouzon Syndrome
A rare genetic form of craniosynostosis.- Apert Syndrome
A rare genetic form of craniosynostosis.- Saethre-Chotzen Syndrome
A rare genetic form of craniosynostosis.- Positional Plagiocephaly
A change in head shape caused by external pressure on the skull.- Hemifacial (Craniofacial) Microsomia
A condition with underdevelopment of the ears and jaws.- Treacher Collins Syndrome
A rare, inherited, congenital craniofacial condition that affects the bones, jaws, skin and muscles of the face.- Other Rare Conditions
We treat other conditions not listed here.
Children's has another nice resource dedicated to cleft lip and palate:
One especially detailed document is their "Critical Elements of Care", which goes into a lot of detail about what to expect over the years in terms of clinic visits, surgeries, and other interventions:
